Thalassaemia: Current Affairs, GK & News - 2020-2021

February 29: World Rare Disease Day

Published: February 29, 2020

Every Year, last date of February is observed as World Rare Disease Day. It was first launched by Eurordis in 2008. It aims to create awareness about the impacts of the disease. This year, it is observed on the theme Theme: Reframe Rare for Rare Disease Day Rare Diseases The rare diseases include Thalassemia, Haemophilia, ..

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National Draft Policy on Rare Diseases

Published: January 15, 2020

On January 13, 2020, the Government of India released its National Draft Policy on rare diseases. The policy has proposed one-time fund of Rs 15 lakhs to treat rare diseases under Ayushman Bharat. The policy was drafted by Ministry of Health and Family Welfare Highlights Under the policy, certain medical institutes will be certified as ..

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World Thalassemia Day 2019 observed on 8 May

Published: May 8, 2019

Every year 8 May is observed as ‘World Thalassaemia Day’ globally. The theme for 2019 was “Universal access to quality thalassaemia healthcare services: Building bridges with and for patient”. About World Thalassaemia Day Objective:  to raise awareness about thalassaemia (a genetic disease), its prevention and measures to avoid its transmission among people throughout the world. ..

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