Odisha to Launch India’s First Chronic Kidney Disease Registry

Odisha is set to become the first state in India to plan a comprehensive chronic kidney disease (CKD) registry, with the initiative expected to be rolled out by March 31. The registry aims to generate reliable data on CKD prevalence and support evidence-based policymaking to address the growing burden of kidney diseases.

Objective and Significance of the CKD Registry

Health officials stated that no Indian state currently has complete coverage under a CKD registry. While a national-level CKD registry was earlier initiated by the Nephrologists Association of India, it is presently inactive with limited data availability. The Odisha initiative is intended to fill this gap by creating a state-wide, structured database that will help in early detection, treatment planning, and long-term disease management.

Institutional Framework and Technical Support

According to Susanta Kumar Swain, Additional Director of Health Services (Non-Communicable Diseases), a 12-member state task force has been constituted under the chairmanship of the Chief Secretary. In addition, a 17-member technical sub-committee, also referred to as the state working group, has been formed. It includes experts from AIIMS, Indian Council of Medical Research, health institutions, the Odisha State Pollution Control Board, and departments dealing with drinking water, geology, and Panchayati Raj. The National Informatics Centre is developing dedicated software for the registry, and funds have already been earmarked to expedite implementation.

Data Coverage and Disease Burden in Odisha

The registry will capture CKD cases across all levels of healthcare, from primary health centres to medical colleges. Currently, available data largely covers dialysis patients, representing only about 10% of total CKD cases. Nearly 90% of patients are in early stages. Of the total CKD burden, around 60% is linked to diabetes and hypertension, while the remaining 40% falls under CKD of unknown origin.

Imporatnt Facts for Exams

• Odisha will be the first Indian state to plan a complete CKD registry.
• CKD prevalence in Odisha is around 14% among people above 15 years.
• Diabetes and hypertension account for nearly 60% of CKD cases.
• NIC is responsible for developing the CKD registry software.

Baseline for Research and Policy Planning

Official data show that Odisha reported 19,888 CKD cases and 4,718 CKD-related deaths over the last three years. The proposed registry will act as a baseline for future research, epidemiological analysis, and targeted public health interventions aimed at reducing CKD-related morbidity and mortality.