Rare diseases Current Affairs, GK & News

National Policy for Rare Diseases, 2021

The Ministry of Health and Family Welfare recently approved the “National Policy for Rare Diseases, 2021”. Key Features of National Policy for Rare Diseases, 2021 The policy focuses on early screening and prevention of rare diseases. This is to be achieved through Health and Wellness Centres. The screening is to be supported by the Nidhan ..

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Rare Disease Day observed on 29th February 2020

Rare Disease Day is observed across the world on the last day of February each year. This year it is observed on February 29, 2020. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on the lives of patients. It is ..

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Intas becomes India’s first company to launch Romiplostim to treat chronic ITP

Drug-maker Intas Pharmaceuticals Ltd has become the first company to launch Romiplostim in India under the brand name Romy for the treatment of chronic Immune Thrombocytopenia (ITP). ITP is an autoimmune blood disorder which leads to low platelet counts. The newly-launched drug will cost just one-fifth of the price of the current medication. It is ..

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Short Note – Rare Diseases

A disease can be defined as a disorder in the structure/function of a living organism that is not the result of a past injury. What are rare diseases? Conventionally, a rare disease is one which affects only a small population of people living in a certain location. The most common rare diseases are haemophilia, thalassemia, ..

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